Thursday, July 23, 2009

Having a great summer.

Peyton is doing very well. He is still having really good days with his eating and drinking. We are only having a few not so good days now. I am so glad!! I tell you is can be very frustrating we he will not eat or drink. I just can not let him know that I am frustrated. I am hoping soon that he will not have any bad days!
The weather here has been nice lately so we have spent some time outside. He loves to be outside. There for a while it was so hot that you could not go outside except to get into the car. We were glad to see the low to mid 90's again. We have gone on lots of rides on the 4-wheeler out behind out house. We have gone and watched the big tractors behind our house. They are working on the lakes out back. He really likes to go and watch them.
I have really enjoyed being home with Peyton this summer. I really hate that my summer is coming to and end very soon. Too soon!! It is about time for me to be planning birthday #4. I can't believe it. It just does not seem possible. He is growing up to fast!!!!

Saturday, July 11, 2009

Back in the swing of things

Peyton has had a great week. We are trying to get back into the swing of things here at home. He has started back to his therapies here at home. Horse back riding is out for the summer but will start back up in September. We have been working on eating all week with lots of stand-offs. Crazy little boy!!! Thursday was the first day that he ate and drank for me really well. I am hoping that he keeps up the good work. If he does keep it up we may be able to go down on what is left of his pump feed.
Thursday night we had to go back to Dallas because he had an early morning doctor appointment on Friday. We stayed at the Ronald McDonald House for the night. Friday morning we went to see the Orthopedic just to make sure that Peyton's legs and hips had no problems. His feet are turned out some but the doctor said that everything is okay. There is nothing to worry about. We were very relieved to get this news. When we originally made the appointment back in November he was falling some and his right foot seemed to be turned out more. Doctor said just to continue with his physical therapy. No need to return unless some other problems occur.

Here are a few pictures from the 4th of July fireworks here in Longview.

Peyton and his Gaga and Nannie

Peyton and Papa

Since we have been home is has been so hot outside that we have not been able to play for long periods of time. We have to go out early morning or late afternoon. This 100 degree weather is no fun!! We are just trying to stay as cool as possible. I can only imagine what the weather is going to be like in August.
Peyton riding his new car. He loves this little car.

Sunday, July 5, 2009

Love being home!

Well, we have now been home almost a week. It was so nice to get home and sleep in our own beds. There is no place like home!! We have not done a lot since we have been home other that rest and relax and of course eat our bites and take our drinks. Peyton has really been trying me since we have been home. Eating is not the problem, it is the drinking! He just does not like it. I know he can drink I just have to sit and wait for him to decided to drink. If he does not drink he can not eat, that is part of the program. He must take 3 bites then 3 drinks. We can not skip any one of them or he would not be drinking again. He will figure out that things are not going to change since we are home. We are sticking to the plan that we learned at OCH.
I hope that everyone had a Happy 4ht of July. We did not do much here. On the 3rd we took Peyton to see the Longview Fireworks. He really enjoyed them I think. He would tell us the colors of them as they were in the air. I hope you have a great rest of the holiday weekend!